About hcm

A foundation built by friends and family

After Ken’s passing in 2002 from hypertrophic cardiomyopathy, the people who loved him turned their loss into a lasting way to help students and families.

Our Work

Every day, together with you, we help young athletes stay on the field and go home safe.

Who We Are

Our mission, our vision and the story of how the foundation began in 2002.

Leadership

Meet the volunteer board of directors who run the foundation and its events.

Strategic Partners

The program partners and corporate sponsors who extend our reach.

KEN'S LEGACY

Ken Carlson Jr. was a beloved husband, son, brother, and friend. After his passing in 2002 from HCM, his friends and family decided to begin a foundation in his memory, and the Ken Carlson Jr. Memorial Foundation was born.

The Foundation holds annual events to raise funds to provide scholarships for post-secondary education and to support medical research, awareness, and early detection of cardiomyopathy.

What Is Hypertrophic Cardiomyopathy (HCM)?

Hypertrophic Cardiomyopathy (HCM) is a genetic heart condition characterized by abnormal thickening of the heart muscle, which can interfere with the heart’s ability to pump blood effectively. This condition affects people of all ages and is one of the leading causes of sudden cardiac death in young people.

Symptoms of HCM can vary widely from person to person and can include shortness of breath, chest pain, dizziness, fainting, and palpitations. However, some people with HCM may not have any symptoms at all, so knowing your family heart history and recognizing symptoms are important for early diagnosis and treatment.

Recognizing Symptoms

Shortness of breath

Notice if you feel winded during light daily tasks like making a bed or walking.

Chest discomfort

Pay attention to pain or pressure during physical exertion.

Dizziness and fainting

Never ignore lightheadedness, rapid heartbeats, or fainting spells, which require urgent medical evaluation.

Fatigue

Recognize unusual tiredness during normal activities

Family Heart History

Know your family tree

HCM runs in families and can pass silently across generations.

Talk to relatives

Ask family members about unexplained heart trouble, murmurs, or sudden cardiac death.

Learn more

Read guidance provided by the American Heart Association.

Diagnosis of HCM

Diagnosing HCM usually starts with a medical history, physical exam, and an echocardiogram, sometimes paired with an EKG, cardiac MRI, or genetic testing. There’s no cure, but medications are available to help manage symptoms such as chest pain and shortness of breath, and to help control abnormal heart rhythms; in some cases, surgery or an implanted device may be recommended. With proper medical management, many people with HCM live long, healthy lives.

The Gap We’re Closing

A comprehensive cardiac screening an EKG paired with an echocardiogram can catch warning signs before they become emergencies, but most young athletes are only cleared to play with a history-and-physical exam. Insurance typically won’t cover it unless a child already has symptoms, and for HCM, the first symptom is sometimes sudden cardiac arrest. Screening can run from several hundred to well over a thousand dollars  out of reach for many families. The Ken Carlson, Jr. Memorial Foundation funds community screening days, delivered by our partner Heartfelt, to close that gap: offering both an EKG and an echocardiogram, read by a cardiologist, at no cost to the family.

This information is provided for general education only and is not a substitute for medical advice. Please consult a physician regarding diagnosis or treatment.”

Diagnosing HCM usually starts with a medical history, physical exam, and an echocardiogram, sometimes paired with an EKG, cardiac MRI, or genetic testing. There’s no cure, but medications are available to help manage symptoms such as chest pain and shortness of breath, and to help control abnormal heart rhythms; in some cases, surgery or an implanted device may be recommended. With proper medical management, many people with HCM live long, healthy lives.

The Gap We’re Closing
A comprehensive cardiac screening — an EKG paired with an echocardiogram — can catch warning signs before they become emergencies, but most young athletes are only cleared to play with a history-and-physical exam. Insurance typically won’t cover it unless a child already has symptoms, and for HCM, the first symptom is sometimes sudden cardiac arrest. Screening can run from several hundred to well over a thousand dollars — out of reach for many families. The Ken Carlson, Jr. Memorial Foundation funds community screening days, delivered by our partner Heartfelt, to close that gap: offering both an EKG and an echocardiogram, read by a cardiologist, at no cost to the family.

This information is provided for general education only and is not a substitute for medical advice. Please consult a physician regarding diagnosis or treatment.

References

Numbers that mean names

20+

YEARS OF IMPACT

$1M+

INVESTED IN SCHOLARSHIPS AND RESEARCH

COUNTLESS

STUDENTS AND FAMILIES SUPPORTED

Numbers that mean names

99+

students and their families screened at no cost

(2023 & 2024 total – Heartfelt to provide update for years of sponsorship soon)

25

previously undetected cardiac conditions identified

(2023 & 2024 total – Heartfelt to provide update for years of sponsorship soon)

$271K+

students and their families screened at no cost

Board Members

Chuck Ford Jim Prendergast Brian Teitelbaum John Twomey Michelle Carlson John Palus Mike Alvarez Clint Bogan Sanjay Yodh
Chuck Ford Jim Prendergast Brian Teitelbaum John Twomey Michelle Carlson John Palus Mike Alvarez Clint Bogan Sanjay Yodh

Your gift keeps a legacy going

Every dollar raised funds scholarships for students and research into cardiomyopathy detection and treatment.